| MyMSMyWay |
Online cognitive games designed for people with MS by a team of healthcare professionals specializing in MS and cognition, as well as members of the MS community. (Added:20/07/2009) |
| N Ireland MS Society
|
New site is up & running |
| Mid-Ulster Branch
|
Check out Mid-Ulster's webpage |
| Newry & Mourne Branch |
Newry & Mourne Branch are also online now |
| Cookstown MS site | Cookstown Help & Support Group are now online. Added 06/04/2006 |
| UK MS Society
| Prize winning site with information,
research etc. & links to branches in GB |
| New UK MS Society site for young & newly diagnosed | This new website, launched 23/01/2006, is aimed at young people newly diagnosed with MS. It aims to provide information about living with MS, highlight sources of information and support, and send out the message that life doesn't stop when MS starts. It is hoped it will go some way to helping young people understand the impact this unpredictable and challenging disease might have on their lives. Link added: (31/01/2006) |
| MS Trust
|
The MS Trust is a charity whose aim is to enable persons with MS to live their lives to the full by providing information, education for heath professionals, research into better management of MS and support for individuals.
|
|
Irish MS Society |
Irish research,
perspective, information & personal profiles
of people living with MS. |
| US National MS Society |
Another excellent
site including on-line access to a video of
a major conference in October 2000 which focussed on three main
areas - drug treatments/ remylination / environmental triggers.
The transcript can also be downloaded and read separately |
| Federation of MS Societies |
International
Federation of MS Societies - well worth a visit! Includes
free online access to bi-annually updated book assessing effectiveness
of huge range of treatments - also provides access to huge section
on research and advice and discussion on managing symptoms. |
| Accelerated Cure Project
|
Also known as Boston Cure Project, this non-profit company is dedicated to
curing MS by determining its causes. Founded by Art Mellor when diagnosed with MS & his neurologist, Dr Vartanian in 2001, it is now a national company pursuing it's goals in accordance with it's "Cure Map". (Link added: 08/02/2006)
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| PatientsLikeMe |
PatientsLikeMe is a unique treatment and outcome sharing community for people with life-changing diseases. It was launched in 2006 for ALS (Lou Gehrig's disease) patients and has recently expanded to include Multiple Sclerosis and Parkinson's disease. You can search for a particular treatment or symptom to find out the experience of over 2,300 patients. You can also join (it's free) and add your own treatments and symptoms to the database. Many of the contributors give permission for their individual details to be made public and these can be accessed on the site. (Link added: 13/09/2007) |
| Canadian MS Society |
Contains large
databank of information & research. Includes page of personal
profiles. |
| Australian MS Society |
Australian research,
perspective & information |
This is MS | An independent research news & community site without company grants, medical center affiliations, or advertisements, privately funded by individuals interested in fighting MS. Link added 06/04/2005
| | All About Multiple Sclerosis |
UK based informative
& interesting site created and maintained by people with
MS for people affected by MS. Includes MS news, MS information,
personal experiences and contributions by people with MS |
| Multiple Sclerosis Resource
Centre | The MSRC is a UK charity committed to supporting anyone affected by MS
through access to unbiased information and advice. Their approach is to encourage individuals
to make choices that are appropriate to their daily lives. (Posted: 25/06/2008)
|
| UK MS Society Tissue Bank | The background,
aims & details of the tissue bank. Potential donors invited
to register for a donor card. |
| BMJ Best Treatments Site | An impressive new website from the British Medical Journal that rates thousands of health and medical treatments, based on clinical evidence of how well they work. Link added 24/05/2006) |
| Belfast Centre for Independent Living |
Promotes principles of independent living and advises on using Direct Payments.
|
| Help
with Decisions on Disease Modifying Drugs |
A new site provides factual information to help
people make decisions that are best for them. It describes the mechanism of MS with diagrams and the various treatments in clear language. It includes video of the process of self-administered injection treatments . Established by consortium including UK MS Society. |
| Motability |
Excellent official
site with information on schemes for wheelchairs, vehicles, adaptations
and lists of suppliers, prices etc. |
| Research & Information |
Vast databank
of research & information on MS |
| Personal MS Websites |
Site hosts links
to personal websites of people with MS - mainly Canadian or US |
Foyle Branch Useful Links Page